In short:
The family and carers of Goondiwindi man Shane Danes, who has complex care needs, say changes to his NDIS plan have left him vulnerable.
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changes → have → him
His support provider says he could have died if she had not come to work early in April this year.
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she → say → April
Disability advocates say it is not an unusual story, with providers forced to choose between earning a living wage and keeping their clients alive.
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providers → say → clients
Shane Danes is a "social butterfly", a die-hard Parramatta Eels fan and loves classic Aussie rock.
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Danes → love → rock
The 64-year-old also lives with an acquired brain injury and spinal cord injury from a car crash 44 years ago and a fall in 2022.
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old → live → 2022
"Shane is a bit of a local celebrity," said his support provider Michelle Doughty.
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provider → say → celebrity
He also needs round-the-clock care at his home in the rural Queensland town of Goondiwindi, which is why Ms Doughty was so worried when the National Disability Insurance Scheme (NDIS) began to reduce his budget.
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Scheme → need → budget
Mr Danes's funding through the scheme declined in October 2025 and again in April 2026 when his family attempted to get funding back to previous levels.
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family → decline → levels
It meant his elderly parents, Toni and Merven Danes, both 90, had to support him for two hours each evening.
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parents → mean → hours
But they said he was left alone for an hour between 6am and 7am each day, when the family felt it was safest, because of the shortfall in funding.
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it → say → funding
Ms Doughty said she was so worried that on the third day of the new arrangement she came into work early on April 21 and found Mr Danes vomiting, which she feared could have been fatal had she not been with him.
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she → say → him
"Shane would have aspirated, and the outcome wouldn't have been what it was," she said.
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she → aspirate → ?
"Now, if we'd done that to an animal, we would be in trouble, but yet people expect us to do that to a human,"she said.
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us → do → human,"she
Ms Doughty said because of this incident, her company decided to charge the NDIS less so they could spend more hours with him and barely broke even providing his care.
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they → say → care
"I'm doing what I know is right for my beliefs," she said.
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she → do → beliefs
While the change to Mr Danes's care was made before reforms to the NDIS were legislated in August, his family, who all devote time to looking after him, said they are worried about his future.
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they → make → future
Family stretched
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Family → stretch → ?
Shane Dane's sister, Tracy Sullivan, 62, has cared for him for decades, along with their mother, and is desperate to keep him out of aged care.
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sister → care → care
She said the work includes hoisting, transfers, bowel and bladder management, personal care, meals, managing medication, and bed sore prevention.
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work → say → medication
Ms Sullivan said she supports her brother while managing paid work and caring for her grandchildren because of a lack of child care in the rural town.
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she → say → town
"I love and enjoy being with him," she said.
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she → love → him
"[But] it's been a bit of a hard slog."
Advocates stretched
Independent disability advocate Alyce Nelligan said Mr Danes's story was not unusual.
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story → stretch → slog
More than $2.8 billion was cut from NDIS participant plans between July 2024 and March 2026.
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billion → cut → July
Ms Nelligan said some providers were picking up the slack after having to choose between their wages and keeping their clients alive.
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providers → say → clients
"Nobody should be put in that position,"Ms Nelligan said.
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Nelligan → put → ?
A National Disability Insurance Agency (NDIA) spokesperson said the safety and care of participants was its priority, and it carefully considers all information when deciding what funding and supports a participant should receive.
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participant → say → funding
When the NDIS was rolled out a decade ago, Mr Danes's family were relieved he could finally have the life he deserved.
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he → roll → life
His local doctor, Goondiwindi GP Sarah Gleeson, said he thrived under his previous care arrangement.
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he → say → arrangement
"If someone could be the poster boy for NDIS, it would be Shane," Dr Gleeson said.
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Gleeson → say → NDIS
She said since the changes there had been situations where he has been unable to have his catheter or stoma changed, which also impacted his quality of life.
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which → say → life
"It impacts his dignity, and it impacts the small moments of independence that he can have," she said.
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she → impact → that
The Aporia