- Published
Beth Dobbin is so determined to raise awareness of the illness that has decimated her life that she is speaking out, despite knowing it could trigger a brutal deterioration in her health.
uncertain
it → publish → health
Five years ago, she ran for Great Britain at the Tokyo Olympics.
asserted
she → run → Olympics
Now, at 32, she spends more than 22 hours a day in bed.
asserted
she → spend → bed
"I've done little things like attend a blood test at the doctors and been in bed for months after.
asserted
I → do → months
So doing this interview, chatting away for 30 minutes, that could have an impact on me in 2027," she says.
uncertain
she → do → 2027
"But I felt like it was really important to do that to get the message out."
asserted
it → feel → message
She now only gets out of bed to eat and use the bathroom.
asserted
She → get → bathroom
Dobbin has been diagnosed with ME, or myalgic encephalomyelitis - a chronic, fluctuating disease, causing symptoms such as sleep problems, problems with thinking and memory, pain and severe, persistent fatigue that does not improve with rest, and more.
asserted
that → diagnose → rest
A conversation, or even something so simple as a light too bright or a sound too loud, can cause a "crash" that lasts 24, 48 hours, or in the worst cases, months on end.
asserted
that → cause → end
This year, Dobbin has left the house on just five occasions.
asserted
Dobbin → leave → occasions
"It's life-decimating like I can't even put into words," she says.
asserted
she → decimate → words
"I feel like I've lost everything.
asserted
I → feel → everything
"I have still got my family, but I've lost my independence, my health, the ability to work, the ability to exercise.
asserted
I → get → independence
For Dobbin it all started with back-to-back Covid and glandular fever infections in the winter of 2021-22.
asserted
it → start → 2021
She had not been unwell with either, only discovering she had contracted both through retrospective tests.
asserted
she → discover → tests
She had been sleeping a bit more and her running times were slightly down, but nothing that raised alarm.
asserted
that → sleep → alarm
As time went on, she noticed soreness in the glands of her neck and armpits and a general sense of not quite feeling herself.
asserted
she → go → herself
British Athletics doctors ran tests that gave no answers, so she carried on, assuming it was lingering glandular fever that would eventually pass.
She qualified for that year's World Championships, Commonwealth Games and European Championships in what was an unusually condensed season owing to the backlog from the pandemic.
asserted
what → run → pandemic
Her health progressively deteriorated.
asserted
health → deteriorate → ?
At the Worlds, she struggled with a painful throat and was waking at unusual times in the night.
asserted
she → struggle → night
At the Commonwealths, she was dizzy while running and her body was more sore than normal.
asserted
body → run → Commonwealths
At the Europeans, she false-started after losing all feeling in her legs while in the blocks.
asserted
she → start → blocks
She spoke of her "year of hell" in an emotional interview with BBC Sport after that race.
asserted
She → speak → race
"When the Europeans had finished, I had this huge rest and the symptoms were just piling on.
asserted
symptoms → finish → rest
Things were getting worse and worse," Dobbin says.
asserted
Dobbin → get → ?
"I was struggling to stand up, I was sleeping loads, in bed all the time.
asserted
I → struggle → bed
"After six weeks, I went back to training.
asserted
I → go → training
I managed three weeks.
asserted
I → manage → weeks
"[Doctors] were just really shocked that I still wasn't doing well and I'd had these viruses months ago.
asserted
I → do → viruses
"I think I saw four or five different specialists because the symptoms that I was having, they were across multiple [body] systems.
asserted
they → think → systems
All the specialists said 'this is ME' and we don't want it to be that because there's nothing out there for it."
asserted
it → say → it
ME has no known cure or specific treatment, with patients often relying on off-label medication to manage a condition that can cause more than 200 symptoms, including nausea, headaches, poor cognitive function and brain fog.
asserted
that → have → nausea
The condition is also known as chronic fatigue syndrome (CFS), a label Dobbin strongly rejects.
asserted
Dobbin → know → syndrome
As a former athlete who balanced working eight-hour shifts with training before turning professional, she says she has "known fatigue my whole life" and believes the term fails to capture the severity of the illness.
asserted
term → balance → illness
"I wish it was just fatigue, that would be a walk in the park," she says.
asserted
she → wish → park
If I thought of fatigue in my top 20 symptoms it might just make the cut."
uncertain
it → think → cut
Instead, she says, it feels like her entire body "is shutting down; it feels like you are a few days from death".
asserted
you → say → death
More than 400,000 people in the UK are thought to have ME, although the true figure could exceed one million, with severity ranging from people able to work or study to those requiring round-the-clock care and tube feeding.
uncertain
severity → think → care
Despite the length of time she spends in bed, Dobbin often feels too unwell to sleep and requires medication to help her do so.
"Even things like sitting up for a prolonged period of time can take it out of me so I prefer to be just propped up in bed, and that doesn't mean I feel fine.
asserted
I → spend → bed
It doesn't get rid of my symptoms, but it makes them less hellish."
asserted
them → rid → symptoms
…and 29 more, not listed.
The Aporia
